Epilepsy Foundation
The Epilepsy Foundation is the national voluntary agency solely dedicated to the welfare of the 3 million people with epilepsy in the U.S. and their families. The organization works to ensure that people with seizures are able to participate in all life experiences; and to prevent, control and cure epilepsy through research, education, advocacy and services. In addition to programs conducted at the national level, epilepsy clients throughout the United States are served by local Epilepsy Foundation offices in nearly 100 communities.

Epilepsy.com
Epilepsy.com is an online resource provided by the Epilepsy Therapy Development Project. Their mission is to inform and empower two groups of patients and their families: those facing newly diagnosed epilepsy, and those struggling with epilepsy that has resisted treatment.

Faces
Finding A Cure for Epilepsy and Seizures (FACES) is a non-profit organization affiliated with the NYU Comprehensive Epilepsy Center. Founded in 1996 by Orrin Devinsky, M.D., Director of the NYU Comprehensive Epilepsy Center, FACES’ mission is to improve the quality of life for all people affected by epilepsy through research, education and awareness, and community-building events.

Citizens United for Research in Epilepsy (CURE)
Citizens United for Research in Epilepsy, is a volunteer-based nonprofit organization founded by parents of children with epilepsy who were frustrated with their inability to protect their children from the devastation of seizures and the side effects of medications. Unwilling to sit back and accept the debilitating effects of epilepsy, these parents joined forces to spearhead the search for a cure. Administrative costs are kept to a minimum, so that money raised can go directly towards finding a cure.

Lennox-Gastaut Foundation
The LGS Foundation is a nonprofit organization  dedicated to providing  support and information about Lennox-Gastaut syndrome while raising  funds to help pursue additional research and services for LGS families.

AED Pregnancy Registry
The AED Pregnancy Registry is dedicated to determine the safety of anticonvulsant medications that can be taken by women during pregnancy to treat disorders such as epilepsy, mood disorder, and chronic pain. The primary goal is to determine the frequency of major malformations, such as heart defects, spina bifida and cleft lip, in the infants exposed during pregnancy to anticonvulsant drugs.

Parents Against Childhood Epilepsy (PACE)
Parents Against Childhood Epilepsy, Inc. is a 501(c)3 not for profit corporation formed in 1996 to battle this devastating and far-reaching disease. It was founded by a group of parents in response to their experiences in caring for the medical, physical, social, educational, developmental and emotional needs of their children who suffer from epilepsy and severe seizure disorders. Our fundraising efforts support advances in medical research of epilepsy, as well as provide information and support to many families with similar needs.

Infantile Spasms.com

Infantile Spasms.com
Infantile Spasms.com is an educational site for families with children with infantile spasms. This site is managed and developed by a family of a child with infantile spasms.

Charlie Foundation
The Charlie Foundation was established in 1994 in order to raise awareness about the ketogenic diet as a treatment for childhood epilepsy. The modern success of the diet has led to new demands on the medical community. In order to meet these demands, the Charlie Foundation has expanded its priorities to include educational programs for dietitians and neurologists as well as support for clinicians and researchers working to perfect its administration and discover its mechanisms.

NIH’s National Institute of Neurological Disorders and Stroke (NINDS)
The National Institute of Neurological Disorders and Stroke (NINDS) conducts and supports research on brain and nervous system disorders. Created by the U.S. Congress in 1950, NINDS is one of the more than two dozen research institutes and centers that comprise the National Institutes of Health (NIH). The NIH, located in Bethesda, Maryland, is an agency of the Public Health Service within the U.S. Department of Health and Human Services. NINDS has occupied a central position in the world of neuroscience for 50 years.

NINDS/Coriell Cell Line Repository
The NINDS Human Genetics Resource Center at the Coriell Institute is a growing bank for human cells, DNA samples, clinical data, and information sources, to accelerate research on genetics of disorders of the nervous system.