What is EPGP?
EPGP is a research study that is enrolling patients with epilepsy and healthy controls to try to uncover the role our genes play in the development of certain types of epilepsy.

Where is EPGP taking place?
The study is taking place at 13 clinical centers in the US. Click here to find a clinical center.

How many people will be participating?
The study will enroll a total of 3750 epilepsy patients and 3000 controls.

Am I/Is my child eligible to participate?
If you or your child has generalized or localized epilepsy and a brother or sister with epilepsy, you may be eligible to participate. If you or your child has infantile spasms, Lennox-Gastaut Syndrome, or an abnormality of cortical development and both biological parents are able to participate, you may be eligible to participate.

What is required?
Patients or their caregivers and controls are asked to donate some blood so their DNA can be extracted and studied. A study nurse or physician will ask you some questions. Patients with epilepsy may be asked to have an EEG, an MRI, or both, if they have not already been done.

How long will this take?
For patients who match the EPGP enrollment criteria, a study nurse will schedule a two-hour clinic visit. For controls, it will take about 30 minutes to answer questions and donate blood.

Who are the key personnel involved in the study?
The principal investigators are Daniel Lowenstein, MD of the University of California, San Francisco and Ruben Kuzniecky, MD of New York University School of Medicine.

Who is sponsoring the study?
EPGP study is sponsored by the National Institute for Neurological Diseases and Stroke (NINDS).

Where can I get more information?
For more information on the study, contact info@epgp.org.