I wasn't diagnosed with epilepsy until my mid twenties. I had lived with the symptoms since I was about 9 yrs old. I am happy to say that after being tested, I could finally find comfort in treatment, and live a normal life, without any limitations.

I find it particularly important to share my story in hopes that someone who may be afflicted with pain and symptoms that are difficult to deal with, will be able to learn about epilepsy, and find and receive treatment.

I joined the EPGP project because I believe that the medical community can help us understand the source of our condition and also that research will bring awareness to those who need it.

In my case, it wasn't until my younger brother had a series of grand-mal seizures that I learned about my own condition and was able to get the relief I needed.

As genetics played a critical role in my case, I find the EPGP a critical part of experience, past & future.

- Joanna, San Francisco